Exploring the needs of chronic pain patients and their informal caregivers for diverse pain education tools

Chronic Pain is complex in most cases as it has no cause, no cure, and no biomarkers; thus, a biopsychosocial approach is suitable for researching pain. Healthcare researchers have established evidence-based information about pain education to achieve better patient care; however, patients' desires, needs, capacities, and caregivers should be considered to enhance ways for them to understand and use such complex information in their everyday lives. This study explored the needs of chronic pain patients and their caregivers for diverse pain education tools through a participatory design approach: a needs analysis was conducted, as well as explorations of education tools that vary in media forms. As a result, insights on the development of pain education tools and good practices of patient-centred care were generated, such as the preference for practical pain management in pain education, and urgency to deliver more comprehensive care for patients in healthcare.