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Banging down doors: parents' experiences of gaining access to autism care services

Resource type
Thesis type
(Thesis) M.P.H.
Date created
2015-04-22
Authors/Contributors
Abstract
Although a great amount of attention has been recently paid to the state of autism care services in Ontario, little of this attention has been focused on the services for school-aged children and the services in rural-remote regions. This study presents the access experiences of three parents of school-aged children (ages 4-12) in Northwestern Ontario. Parents take on the role of the Navigator-Advocate in order to facilitate access to services for their child in three identified systems: education, health and medical services, and community-based services. Key themes in parents’ experiences include having their experience of a service being dependent on a particular individual, a lack of compassionate understanding from others, insufficiently educated service providers, and exclusion. Parents’ experiences of access could be ameliorated through the development of an integrated care model for autism that is responsive to navigational experiences and the geographical and human resource challenges of Northwestern Ontario.
Document
Identifier
etd9002
Copyright statement
Copyright is held by the author.
Permissions
The author has not granted permission for the file to be printed nor for the text to be copied and pasted. If you would like a printable copy of this thesis, please contact summit-permissions@sfu.ca.
Scholarly level
Supervisor or Senior Supervisor
Thesis advisor: Steinberg, Malcolm
Member of collection
Download file Size
etd9002_BOlibris.pdf 2.28 MB

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