Encouraging aging parents of an adult child with a developmental disability to plan for the future

A future plan is key to directing and continuing supports for a person with a developmental disability. Despite its importance, many aging parents of an adult with a developmental disability do not have a future plan ready for the time when they will be unable to provide supports. This study explores why some parents in British Columbia do not have a future plan and proposes government actions to encourage future planning. Semi-structured interviews with parents, non-profit and government employees reveal barriers that hinder future planning in the areas of financial, housing, and service processes. Case studies of different jurisdictions examine the current supports for people with disabilities and present possible solutions to facilitate future planning. Four policy options mitigating the barriers are evaluated: an information campaign, increasing housing choices, utilizing a navigator role, and increasing respite. All options are superior to the status quo.