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Family Members' Perceptions Of End-Of-Life Care Across Diverse Locations Of Care

Resource type
Date created
2013
Authors/Contributors
Abstract
BackgroundThe goal of the study was to assess perceived level of satisfaction with end-of-life care, focusing on the last 48 hours of life.MethodsA previously validated instrument was used in a telephone survey with bereaved family members (n=90) of patients who died within an organization in British Columbia.ResultsBereaved family members had many unmet needs for information about the patient’s changing condition, the process of dying, how symptoms would be managed and what to do at the time of death. In addition, many bereaved relatives felt that the patient or resident had an unmet need for emotional support and that their own emotional needs were not addressed adequately. The last place of care had the most significant effect on all of these variables, with acute care and residential care having the most unmet needs. Hospice had the fewest unmet needs, followed by the palliative and the intensive care units.ConclusionsWe discuss these findings in relation to overall satisfaction with care, focus on individual, ethno-cultural and diversity issues, information and decision-making, symptom management and attending to the family. We conclude by offering possible practices address the end-of-life needs of patients and family members.
Document
Published as
BMC Palliative Care 2013, 12:25 doi:10.1186/1472-684X-12-25
Publication title
BMC Palliative Care
Document title
Family Members' Perceptions Of End-Of-Life Care Across Diverse Locations Of Care
Date
2013
Volume
12
Issue
25
Publisher DOI
10.1186/1472-684X-12-25
Copyright statement
Copyright is held by the author(s).
Scholarly level
Peer reviewed?
Yes
Language
English
Member of collection
Download file Size
1472-684X-12-25.pdf 174.9 KB

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