Family Navigation as a Model of Care: Moving Beyond the Barriers

Author: 
Peer reviewed: 
No, item is not peer reviewed.
Scholarly level: 
Graduate student (Masters)
Date created: 
2019-04-01
Keywords: 
Fetal alcohol spectrum disorder
Fetal alcohol syndrome
Neurodevelopmental disabilities
Family navigation
Pediatric navigation
Health care access
Abstract: 

This capstone explores the disability landscape in British Columbia, Canada through a Fetal Alcohol Spectrum Disorder (FASD) lens mapping out why a Family Navigation model of care could facilitate access to and potential development of needed resources and services for families with children with FASD. A scoping literature review, critical analysis of literature gaps, and secondary data analysis of a quality improvement initiative at a single-site sub-speciality hospital were used to establish promising practises, limitations, and the resultant policy implications for British Columbia. This work was grounded in Critical Disability Theory and the Family Quality of Life theory to stress that within an ableist society we must continue to advocate for collaborative and concrete changes to improve outcomes for families and individuals with FASD throughout the lifespan.

Language: 
English
Document type: 
Graduating extended essay / Research project
Rights: 
Rights remain with the author.
File(s): 
Senior supervisor: 
Charlotte Waddell
Department: 
Faculty of Health Sciences - Simon Fraser University
Thesis type: 
Project (M.P.H.)
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