Simon Fraser University Vancity Office of Community Engagement

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The Power of Disability Part 6 — with Barb Goode

Peer reviewed: 
No, item is not peer reviewed.
Date created: 
2021-05-27
Abstract: 

Barb is a self-advocate leader who has helped shape the disability movement into what it is today. She is a founding member of BC People First, and has been on the Boards of Inclusion BC, the Canadian Association for Community Living (CACL), and International Inclusion. She is presently serving on the board of directors for PLAN Institute, and also works with ImagineACircle, a consulting collaborative, that acts as both a consultant and voice for inclusion.

In 1995, Barb addressed the UN General Assembly (GA), becoming the first self-advocate to present to the GA. She also played a very important role in 1986, when the Supreme Court of Canada made The Eve Decision and ruled that developmentally disabled adults cannot be forcibly sterilized. Barb was on the Editorial Committee for CLBC and contributed to their Just Say HI campaign. In 2011, Barb published her memoir, A Goode Life, and is currently working on the next edition.

Barb is a prolific presenter and workshop co-host for a variety of groups including; Spectrum Consulting, BC Representative of Children and Youth, ESATTA as a voice for self-advocate leadership, and most recently on a webinar with Cornell University Citizen-Centred Leadership series.

Document type: 
Audio

The Power of Disability Part 5 — with Tim Louis and Penny Parry

Peer reviewed: 
No, item is not peer reviewed.
Date created: 
2021-05-20
Abstract: 

Tim Louis is a practicing lawyer who has been actively involved in Vancouver civic politics for over forty years. Tim has lived and worked in Vancouver all his adult life. From his early days as a law student at UBC – during which time he co-founded Vancouver’s custom transit service for people with disabilities [HandyDART], through to his terms as an elected official on both Park Board and City Council, Tim has listened to, and advocated on behalf of, communities across Vancouver.

Penny Parry was born in Montreal and moved to BC in the late 1970’s. She has worked as a university professor, psychologist and artist, among other things. She is a former Child and Youth Advocate for the City of Vancouver. Pennyhas a BFA from Emily Carr University of Art + Design, and a BA and PhD in psychology.

Document type: 
Audio

The Power of Disability Part 4 — with Rabia Khedr

Peer reviewed: 
No, item is not peer reviewed.
Date created: 
2021-05-13
Abstract: 

A former Commissioner with the Ontario Human Rights Commission, Rabia is a founder of the Canadian Association of Muslims with Disabilities, Executive Director of the Muslim Council of Peel and President of DEEN Support Services. Rabia has served on many boards and committees including the Accessibility Standards Advisory Council of Ontario, Ethno-Racial People with Disabilities Coalition of Ontario, Ontario Women’s Health Network and Federation of Muslim Women. Currently, she serves on the Mississauga Accessibility Advisory Committee which she has chaired for 8 years, the Peel Region Accessibility Advisory Committee, and the federal Disability Advisory Group. She is also co-chair of the Disability Without Poverty Initiative, a national movement to secure a Canada Disability benefit for disabled adults in Canada.

Through diversityworX, Rabia has provided training, research and consulting services on accessibility, equity and inclusion for a number of organizations including Health Nexus, ICICI Bank, Ontario Coalition of Agencies Serving Immigrants, the University of Guelph and York Region. Rabia has supported organizations in reviewing and developing policies and procedures that ensure a culture of human rights and accessibility including the implementation of policies and procedures on religious accommodation.

Rabia has presented at local and international conferences to raise awareness about disability issues, women’s rights and Islamophobia and has participated in a number of television broadcasts and documentaries. Rabia has been recognized for her leadership and community contributions and most notably, received the Queen Elizabeth II Diamond Jubilee Medal in 2012.

Document type: 
Audio

The Power of Disability Part 3 — with Carmen Papalia

Peer reviewed: 
No, item is not peer reviewed.
Date created: 
2021-05-06
Abstract: 

Carmen Papalia is a social practice artist who makes participatory projects on the topic of access as it relates to public space, art institutions and visual culture. His work has been featured as part of exhibitions and engagements at the Guggenheim Museum, the Museum of Modern Art in New York, National Art Gallery, Banff Centre, Vancouver Art Gallery, Gallery Gachet and the Tate Liverpool. 

Carmen has received many awards for his work including the Adam Reynolds Memorial Bursary and the Wynn Newhouse Award. He holds a Bachelor of Arts from Simon Fraser University, Vancouver and a Master of Fine Arts from Portland State University.

His current work includes a movement building campaign for Open Access. One of the tenets of Open Access is, “Open Access interrupts the disabling power structures that limit one’s agency and potential to thrive.” Accessibility isn’t relevant only to people with disabilities, Papalia says, “it is an affirmation of mutual trust.” Along with his collaborator mia susan amir, they have created the The Open Access Foundation for Arts and Culture.

Document type: 
Audio

The Power of Disability Part 2 — with Judy Heumann

Peer reviewed: 
No, item is not peer reviewed.
Date created: 
2021-04-29
Abstract: 

Judy is a lifelong activist and leader in the disability rights movement in the United States and internationally. At eighteen months old, Judy was paralyzed from polio and has been a wheelchair user ever since. 

She is the first person who used a wheelchair to teach in New York City but not before she sued the NY City Board of Education.

In 1977 she led the longest sit-in of a federal building to date, lasting 28 days which led to the creation of the Americans with Disabilities Act. The event and its lasting impact is captured in the Netflix documentary, Crip Camp: A Disability Revolution,” which won the Sundance Audience award. It was also shortlisted for the best documentary at the recent (2021) Academy Awards.

She went on to serve as the deputy director at the Center for Independent Living in California for seven years. She Co-Founded the World Institute on Disability with Ed Roberts She has worked for the World Bank and the Ford Foundation. She was appointed first ever Special Advisor on Disability Rights for the U.S. State Department under President Barack Obama.

Time Magazine featured her on their cover as one of the 100 most influential women of the last century representing the year 1977. She is the author of Being Heumann: An Unrepentant Memoir of a Disability Rights Activist.

Document type: 
Audio

The Power of Disability Part 1 — with Victoria Maxwell

Peer reviewed: 
No, item is not peer reviewed.
Date created: 
2021-04-22
Abstract: 

Victoria Maxwell, BFA, BPP* is a sought-after international (and funny) keynote speaker, performing artist and workshop leader. She uses her personal story of recovery from mental illness to increase awareness, transform negative beliefs and ignite powerful conversations about mental health. 

Blending 30 years as an actor, and 15 as a wellness warrior, Victoria inspires people to take immediate action to improve their well-being. She was named one of Canada’s top leaders in Mental Health by the National Centre for Addiction and Mental Health centre (CAMH) and honoured with the National Difference Makers award.

Her plays, keynotes and other efforts have won or been nominated for over 14 awards. They include the Entertainment Industries Council PRISM Award, SAMHSA Voice Award, best foreign stage play at the Moondance International Film Festival, and one of Top Ten Entrepreneurs with Disabilities. She has blogged for Psychology Today for the past 12 years.

Document type: 
Audio

The Stakes of Exposure — with Namiko Kunimoto

Peer reviewed: 
No, item is not peer reviewed.
Date created: 
2021-06-01
Abstract: 

Namiko Kunimoto’s work focuses on race, gender, and urbanization through art and visual culture. She has written on family photography during the Japanese-Canadian incarceration in “Intimate Archives: Japanese-Canadian Family Photography, 1939-1945,” on displacement and labour in “Olympic Dissent: Art, Politics, and the Tokyo Games,” and on the depiction of blackness in Japanese art in The Stakes of Exposure: Anxious Bodies in Postwar Japanese Art. As Director of the Center for Ethnic Studies at Ohio State University, she has organized community discussions on bystander training, panels on the incarceration of Japanese-American, Latino/a people & First Nations peoples at Fort Sil, and workshops on how to take action against racism during COVID-19. 

Kunimoto’s awards include a Social Sciences and Humanities Research Council of Canada Fellowship, Japan Foundation Fellowships (2007 and 2016), a College Art Association Millard/Meiss Author Award, and the Ratner Award for Distinguished Teaching (2019). She has been a panelist for the National Endowment for the Arts and was the Vice-President of the Japanese Art History Forum for three years. Her next project, Transpacific Erasures: Contemporary Art, Gender, Race and the Afterlives of Japanese Imperialism, considers the Pacific War and its traumatic afterlives through the lens of contemporary artists in Japan and North America.

Document type: 
Audio

Theory Of Ice — with Leanne Betasamosake Simpson

Peer reviewed: 
No, item is not peer reviewed.
Date created: 
2021-05-25
Abstract: 

Leanne Betasamosake Simpson is a renowned Michi Saagiig Nishnaabeg musician, writer and academic, who has been widely recognized as one of the most compelling Indigenous voices of her generation. Her work breaks open the boundaries between story and song—bringing audiences into a rich and layered world of sound, light, and sovereign creativity.

Leanne has performed in venues and festivals across Canada with her sister singer songwriter Ansley Simpson and guitarist Nick Ferrio. Leanne’s second album, f(l)light, was released in 2016 and is a haunting collection of story-songs that effortlessly interweave Simpson’s complex poetics and multi-layered stories of the land, spirit, and body with lush acoustic and electronic arrangements. Her EP Noopiming Sessions combines readings from her novel Noopiming with soundscapes composed and performed by Ansley Simpson and James Bunton with a gorgeous video by Sammy Chien and the Chimerik Collective. It was produced during the on-going social isolation of COVID-19 and was released on Gizhiiwe Music in the Fall of 2020. 

Leanne is the author of seven books, including This Accident of Being Lost, which won the MacEwan University Book of the Year; was a finalist for the Rogers Writers’ Trust Fiction Prize and the Trillium Book Award; was long listed for CBC Canada Reads; and was named a best book of the year by the Globe and Mail, the National Post, and Quill & Quire. Her new novel Noopiming: The Cure for White Ladies was released by the House of Anansi Press in the fall of 2020 and in the US by the University of Minnesota Press in 2021 and was named one of the Globe and Mail’s best books of the year and was short listed for the Governor General’s Literary Award for fiction. A Short History of the Blockade was released by the University of Alberta Press in early 2021. Her new project with Robyn Maynard,Rehearsals for Living will be released in 2022 by Knopf Canada.

Her newest record, Theory Of Ice was released by You’ve Changed Records in the winter of 2021, and features the artistic brilliance of Ansley Simpson, Nick Ferrio, Jim Bryson, John K. Samson, Jonas Bonnetta and Sandra Brewster.

Document type: 
Audio

Community-Engaged Learning — with Timothy Eatman and Mohamed Farge

Peer reviewed: 
No, item is not peer reviewed.
Date created: 
2021-05-18
Abstract: 

Timothy K. Eatman, Ph.D., an educational sociologist and publicly engaged scholar, serves as the inaugural dean of the Honors Living Learning Community (HLLC) and Associate Professor in the department of Urban Education at Rutgers University - Newark. Prior to this his primary network of operation and leadership for over a decade was with Imagining America: Artists and Scholars in Public Life (IA) serving as Director of Research (2004 – 2012) and Faculty Co-Director (2012 to 2017). Tim’s national association leadership continues as one of three national co-chairs of the Urban Research Action Network (URBAN) and as board vice chair (chair elect) of the International Association for Research on Service Learning and Community Engagement (IARSLCE) which awarded him the 2010 Early Career Research Award. A widely sought-after speaker, workshop facilitator, and collaborator who has earned local, national and international recognition for his leadership in advancing understandings about the multi-faceted impact of publicly engaged scholarship in the university of the 21st century. This year he was recognized by the University of Illinois College of Education with its 2018 Distinguished Alumni Award.

Mohamed Farge is a scholar in the Honors Living-Learning Community and an undergraduate student at Rutgers University-Newark, pursuing a major in Finance with a minor in Social Justice. He has been working alongside HLLC Dean Timothy Eatman as the Dean’s Intern since September 2019. Since June 2020, he holds the position of Global Markets Sales and Trading Intern at RBC. 

Document type: 
Audio

After Art — with Glenn Alteen

Peer reviewed: 
No, item is not peer reviewed.
Date created: 
2021-05-11
Abstract: 

Glenn Alteen is a Vancouver-based curator and writer as well as co-founder and Director (1984-2020) of grunt gallery. He has worked extensively with performance art and was co-founder of Vancouver’s LIVE Performance Biennale. His writing on performance has been published in books and catalogues and he was also the producer of Brunt magazine. Alteen has been a critical organizer in a number of significant conferences and has also produced a series of websites focusing on current cultural production including, most recently, grunt’s Activating the Archive project. He also helped to establish the Blue Cabin Floating Artist Residency.

Document type: 
Audio